Tulips....

Anyone who has a child with a disability knows all about the story: Welcome to Holland. For those of you that don't you can read it here . I normally don't blog TOO much about BabyBee having Down syndrome but a very good internet friend of ours had a rough week last week and I stumbled across this story again. The paragraphs at the end really get to me and explain a lot of how she is/was feeling:

"But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things... about Holland."

I know our friend wasn't looking for sympathy and neither am I. She was simply explaining that some days are harder than others and was very worried about feeling so sad about what her baby could and could not do. I worry about those things too. On Tuesday we met with a very blunt Physical Therapist who let us know exactly what the BabyBee was doing wrong and I am very glad that she was honest. I am. But at the same time it's like hearing that announcement all over again "Welcome to Holland!" It's not a bad thing. It's just very very different and it takes some time to adjust. But just like you did before you take a deep breath and look around at the beautiful things that "different" has to offer and you realize how simple and charming life can be.




What are YOU grateful for?