Hooray! This is my 100th post! Too bad there's no fireworks or anything... Oh well! I am so excited! Because, today means I am only one whole month away from getting my little family all back together again! WOOHOO! Seriously, this is beyond exciting.
Enough of that. So, the other day I decided that as a mother of a special needs child I should totally get an honorary certificate or something similar that qualifies me to work in the medical field. I know so much more about the human body than I thought I would. Last week Curtis had an appointment with an Orthopedic Surgeon. We went because, our Physical Therapist, Roxanne Small (here's some info on her) http://www.buildingbabiesbetter.com/ has been keeping an eye on Curtie's hips and elbows. She decided that since we are moving soon we should get it checked out just to put our minds at ease. Little did we know what we would find... We were thinking that we would find that some ligaments or tendons were really tight which is why Curtis has some limited rotation throughout his forearms. WRONG! 20 minutes, 4 x-rays and 1 crying shortling later we found out the real problem. Congenital Radioulnar Synostosis. Basically, in his little forearm instead of his bones being side-by-side so one can move on top of the other when you turn your arm different ways, Curtie's bones are fused together near his elbow. It's actually not that bad. He does very well considering how much more this should limit his abilities to self feed. Our lovely doctor pointed out how lucky we were to find this out so young as most children with Down syndrome typically aren't diagnosed until they are around 8 years old. We will need to get it surgically corrected in a few years but not until his dominant hand is established and we can see and decide which position would be most beneficial to have his bones set in. Plus there is a lot or cartilage around the bones so we would need to wait till his bones have grown more. I am just thankful he doesn't need heart surgery. It's still a scary thought but much less so knowing that we won't need to do anything for quite some time! Other than that the boys are doing awesome and both have doctor visits coming up soon when they will have to get shots! Poor guys. Oh well!
Enough of that. So, the other day I decided that as a mother of a special needs child I should totally get an honorary certificate or something similar that qualifies me to work in the medical field. I know so much more about the human body than I thought I would. Last week Curtis had an appointment with an Orthopedic Surgeon. We went because, our Physical Therapist, Roxanne Small (here's some info on her) http://www.buildingbabiesbetter.com/ has been keeping an eye on Curtie's hips and elbows. She decided that since we are moving soon we should get it checked out just to put our minds at ease. Little did we know what we would find... We were thinking that we would find that some ligaments or tendons were really tight which is why Curtis has some limited rotation throughout his forearms. WRONG! 20 minutes, 4 x-rays and 1 crying shortling later we found out the real problem. Congenital Radioulnar Synostosis. Basically, in his little forearm instead of his bones being side-by-side so one can move on top of the other when you turn your arm different ways, Curtie's bones are fused together near his elbow. It's actually not that bad. He does very well considering how much more this should limit his abilities to self feed. Our lovely doctor pointed out how lucky we were to find this out so young as most children with Down syndrome typically aren't diagnosed until they are around 8 years old. We will need to get it surgically corrected in a few years but not until his dominant hand is established and we can see and decide which position would be most beneficial to have his bones set in. Plus there is a lot or cartilage around the bones so we would need to wait till his bones have grown more. I am just thankful he doesn't need heart surgery. It's still a scary thought but much less so knowing that we won't need to do anything for quite some time! Other than that the boys are doing awesome and both have doctor visits coming up soon when they will have to get shots! Poor guys. Oh well!
Poor little Curtis!! I love that kid!
ReplyDeletewow. good for the pt for catching that. glad you checked it out. coug is wearing his new buzz outfit now and loves it!
ReplyDeletejaime